a novel by ATTILA VAGO
It's Cold, Ma,
It's really Cold
A cleft lip and palate author's journey of self-reflection
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In his debut book, Attila Vágó invites readers into the world of a protagonist born with a severe congenital disability to follow his experiences, both traumatising and joyful from birth to a life-altering moment.
Along the journey, he navigates us through a vast variety of cities, stories about the pursuit of love, and the depths of the mind and soul of a beautiful person who had defied all the odds. This inspiring and captivating auto-fiction is a reminder that everyone has a story and every story is worth telling.
One must never underestimate the power of a few stolen kisses. They can kick off or end adventures. When it comes to this book — as the reader will find — it's a little bit of both.
Cleftie
Colloquialism for individuals born with cleft lip and clip palate which is an "umbrella term" for a heterogeneous collection of orofacial clefts. It includes clefting of the upper lip, the maxillary alveolus (dental arch), and the hard or soft palate, in various combinations.
Read stories and find resources about cleft
There simply isn't enough easily accessible information about living with cleft lip and/or palate. See below a continuously updated list of vetted resources I either contributed to or found useful.
If you know of any other useful resources, feel free to contact me
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